Publications

Manuscripts based on data from the TOPP registry

Christian Apitz et al. Hemodynamic and prognostic impact of the diastolic pulmonary arterial pressure in children with pulmonary arterial hypertension—a registry-based analysis. Cardiovasc Diagn Ther. 2021; doi: 10.21037/cdt-20-934

Maurice Beghetti et al. Meaningful and feasible composite clinical worsening definitions in paediatric pulmonary arterial hypertension: An analysis of the TOPP registry. Int J Cardiol. 2019; 289:110-115. (PMID 31072635)

Tilman Humpl et al. Treatment initiation in Pediatric Pulmonary Hypertension – insights from a multinational registry. Cardiol Young. 2017; 27:1123-32 (PMID 27995825)

Johannes M Douwes et al. Acute vasodilator response in pediatric pulmonary arterial hypertension: current clinical practice from the TOPP-registry. J Am Coll Cardiol. 2016; 67:1312-23 (PMID 26988953)

Maurice Beghetti et al. Haemodynamic characterisation and heart catheterisation complications in children with pulmonary hypertension: Insights from the global TOPP registry (tracking outcomes and practice in paediatric pulmonary hypertension). Int J Cardiol. 2016; 203:325-30 (PMID 26583838)

Maurice Beghetti et al. Diagnostic evaluation of paediatric pulmonary hypertension in Current Clinical Practice. Eur Respir J. 2013; 42:689-700 (PMID 23563261)

Rolf MF Berger et al. Clinical features of paediatric hypertension: a registry study. Lancet. 2012; 11;379:537-46 (PMID 22240409)

Oral presentation and poster abstracts based on data from the TOPP registry

Tilman Humpl et al. Classification of congenital heart disease associated with pulmonary arterial hypertension (PAH-CHD) within the TOPP registry. Abstract presented as poster at AEPC 2021

Christian Apitz et al. Impact of diastolic pulmonary arterial pressure on prognostic assessment in children with pulmonary arterial hypertension. Abstract presented as oral presentation at AEPC 2021

Rolf MF Berger et al. Long-term survival of newly diagnosed children with pulmonary hypertension in the current
treatment era. Results from the TOPP-1 registry. Abstract presented as oral presentation at AEPC 2021

Christian Apitz et al. Diagnostic and prognostic impact of diastolic pulmonary arterial pressure (dPAP) and dPAP-derived calculations at rest and during vasoreactivity testing in children with pulmonary arterial hypertension. Abstract presented at the 53rd Annual Meeting of the German Society for Paediatric Cardiology (DGPK) 2021

Rolf MF Berger et al. Pulmonary hypertension in childhood: long-term survival of newly diagnosed patients in the current treatment era. Results from the TOPP-1 registry. Abstract presented at the 13th International Conference for Neonatal & Childhood Pulmonary Vascular Disease 2020

Maurice Beghetti et al. Composite disease progression endpoint in paediatric PAH –clinically meaningful and feasible for clinical research. Abstract presented at Swiss Cardiology 2016

Maurice Beghetti et al. Composite clinical worsening endpoint in Paediatric PAH - clinically meaningful and feasible for clinical research. Abstract presented at AEPC 2016

Mark-Jan Ploegstra. Growth in children with pulmonary arterial hypertension: a longitudinal multi-registry study. Abstract presented at AEPC 2016

Tilman Humpl et al. Heart catheterization (HC) complications in children with pulmonary hypertension (PH) as reported from the global TOPP registry (tracking outcomes and practice in pediatric PH). Abstract presented at AEPC 2013

Robyn J Barst et al. Outcomes of pulmonary hypertension (PH) In childhood: Results from the global TOPP registry. Abstract presented at ATS 2013

Robyn J Barst et al. Complications related to heart catheterization (HC) in children with pulmonary hypertension (PH): Factors identified from the TOPP registry (tracking outcomes and practice in pediatric PH). Abstract presented at ATS 2013

Tilman Humpl et al. Contemporary therapy in pediatric pulmonary hypertension (PH) - results from the global registry tracking outcomes and practice in pediatric pulmonary hypertension (TOPP). Abstract presented at ESC 2012; P1678

Maurice Beghetti et al. Can the clinical classification of congenital heart disease associated pulmonary arterial hypertension be used in pediatrics? Analysis of the TOPP registry. Abstract presented at ESC 2012; P2529

Maurice Beghetti et al. Current clinical practice for diagnosis of pediatric pulmonary hypertension results from the tracking outcomes and practice in pediatric pulmonary hypertension registry (TOPP). Abstract presented at ESC 2012.

Ingram Schulze-Neick et al. Hemodynamic characterization at diagnosis in children with pulmonary hypertension (PH): insights from the global TOPP registry (tracking outcomes and practice in pediatric pulmonary hypertension). Abstract presented at PHA 2012.

Tilman Humpl et al. Treatment patterns in pediatric pulmonary hypertension (PH) - Results from the First Pediatric Global Registry: Tracking outcomes and practice in pediatric pulmonary hypertension (TOPP). Abstract presented at PHA 2012.

Maurice Beghetti et al. Clinical classification of congenital heart disease associated pulmonary hypertension. Does it work for pediatrics? Analysis of the TOPP registry (Tracking outcome and practice in pediatric pulmonary hypertension). Abstract presented at AEPC 2012

Tilman Humpl et al. Current medical treatment in pediatric pulmonary hypertension (PH) - Insights from the global registry tracking outcomes and practice in pediatric pulmonary hypertension (TOPP). Abstract presented at AEPC 2012

Tilman Humpl et al. Treatment patterns in pediatric pulmonary hypertension (PH) – Result from the first pediatric global registry: Tracking outcomes and practice in pediatric pulmonary hypertension (TOPP). Abstract presented at PAS 2012:E-PAS2012:2901.26 (registration required to view abstract)

Ingram Schulze-Neick et al. Hemodynamic characterization at diagnosis in children with pulmonary hypertension: insights from the global TOPP (tracking outcomes and practice in pediatric pulmonary hypertension) registry. Abstract presented at PAS 2012: E-PAS2012:1130.8 (registration required to view abstract)

Rolf MF Berger et al. Pediatric pulmonary hypertension: Insights from the tracking outcomes and practice in pediatric pulmonary hypertension (TOPP) global registry. Abstract presented at ESC 2011: A3760

Ingram Schulze-Neick et al. Hemodynamic characterization at diagnosis in children with pulmonary hypertension (PH): Insights from the global TOPP registry (tracking outcomes and practice in pediatric pulmonary hypertension). Abstract presented at ESC 2011: A3789

Maurice Beghetti et al. Diagnostic evaluation in pediatric pulmonary hypertension (PH) - Results from the first pediatric global registry: Tracking outcomes and practice in pediatric pulmonary hypertension (TOPP). Abstract presented at AEPC 2011

Rolf MF Berger et al. Clinical characteristics of pediatric pulmonary hypertension: Results from the global registry tracking outcomes and practice in pediatric pulmonary hypertension (TOPP). Abstract presented at AEPC 2011

Robyn J Barst et al. TOPP: Clinical features of pediatric pulmonary hypertension in an international registry. Abstract presented at PAS 2012: E-PAS20113645.1 (registration required to view abstract)

Maurice Beghetti et al. Tracking outcomes and practice in pediatric pulmonary hypertension the first multinational registry in pediatric pulmonary hypertension. Poster presented at ERS 2008

Robyn J Barst et al. Tracking outcomes and practice in pediatric pulmonary hypertension the first multinational registry in pediatric pulmonary hypertension. Poster presented at PHA 2008

Robyn J Barst et al. TOPP: The first multinational registry in pediatric pulmonary hypertension. Abstract presented at PHA 2008