Ongoing research projects

With the clinical data obtained by the TOPP-1 registry, many important research questions have already been answered and the TOPP-2 registry is expected to address further medical points in need of clarification around the topic of pediatric PH. However, there is still room for further improving the clinical knowledge base of this severe disease and the Association for PePH continues to aim to close these gaps. The Association for PePH is therefore currently designing further projects covering the topics of follow-up right heart catheterization and risk assessment in pediatric PH. Should you be interested in contributing in any of these research areas, you are highly encouraged to get in touch with us ( We are looking forward to discussing these important research questions.