Association for Pediatric Pulmonary Hypertension (PePH)
The Association for Pediatric Pulmonary Hypertension (PH) was founded in April 2007. As stated in the bylaws of the Association, its mission is to conduct epidemiological research on Pulmonary Hypertension in children and adolescents.
The goal of this research is to improve the diagnosis and prognosis of PH in children and young adults and thus the clinical outcome and long-term care for affected patients. In order to reach this goal, the Association has established a disease registry, called TOPP (Tracking Outcomes and Practice in Pediatric Pulmonary Hypertension). The Registry is driven by the Executive Board of the Association, constituted of physicians specialized in the treatment of PePH. Scientific and medical aspects of the Registry are governed by the Board. For further information on the registry please click on the following link "TOPP Registry".
Physicians and other medical personnel with interest and/or experience in managing pediatric patients with PH are encouraged to become a member of the Association for PePH.